View Single Post
Old 02-25-2013, 10:52 AM   #11
mamacze
Senior Member
 
mamacze's Avatar
 
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
Re: just need encouragement

Awww, Tammy, what a lousy few weeks you have had...chock full of all those only-human kind of fears that haunt and haunt. And as a mom myself; remembering the trauma of the days when I could barely crawl across a room; forget about walk across it; for me it was really about the kids. I wonder if it is the same for you. You are feeling so so sick. You hate for the kids you adore to see you feeling so tired and sick and are loathe to even think about the unthinkable....
"I just hope you guys have some insight I wonder if it is time to call it quits or if that is even my call to make do i keep going as long as the onc is willing to treat"

Every single one of us (who has read your gutsy and honest thoughts) wants to rush into your home, scoop you up and hold you. Comfort you. Get on the floor and play with your beautiful kids. And I bet you are just too darn tired to think outside the box for yet another treatment or another approach.

You are struggling with your faith. And who wouldn't, right? Where is the justice (I am fond of shouting in my daily prayers). Spiritual counseling with a nun (and I am not Catholic) was a huge help for me. Maybe it is an option in your area.

Rely on your sister's here for the wisdom of their experience. Michka, Sarah, Chrisy all have good advice. My only two cents to add is that I would consider sending a biopsy for a tumor profile to see if your tumor has a mutation that matches to an approved treatment.

In the meantime; rest- knowing all of your Her2 sisters here would rush in your house and scoop you up and take care of you in a jack rabbit minute if we were neighbors; but since we live in the hinterlands, we are holding you up in prayer and meditation and love instead.
Stay with us and keep us informed on your path.
Love and hugs, and love and hugs,
Kim (from CT)
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
mamacze is offline   Reply With Quote