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Cat · 05-06-2014, 07:18 PM

Thank you all. I'm using all areas. We submitted forms for patient assistance / compassionate care (? Same thing?). I've got the ins agent on my side and checking into it. Feel better about just gemzar for now with other possibilities for herceptin and/ or perjeta. On the road and feeling a bit calmer after talking with onc and nurses today. Asked him if the people making these decisions are bean counters or actually looking patients in the faces. Said he has gotten so frustrated over the restrictions and nearly got written up arguing for someone. He said they can be tough and not necessarily make decisions base on patient care that seems reasonable to us. Will plug away and hopefully get results.
Thank you, thank you, thank you,
Cathy

05-06-2014, 07:18 PM	#15
Cat Senior Member Join Date: May 2010 Posts: 184	Re: Help... I'm scared... Thank you all. I'm using all areas. We submitted forms for patient assistance / compassionate care (? Same thing?). I've got the ins agent on my side and checking into it. Feel better about just gemzar for now with other possibilities for herceptin and/ or perjeta. On the road and feeling a bit calmer after talking with onc and nurses today. Asked him if the people making these decisions are bean counters or actually looking patients in the faces. Said he has gotten so frustrated over the restrictions and nearly got written up arguing for someone. He said they can be tough and not necessarily make decisions base on patient care that seems reasonable to us. Will plug away and hopefully get results. Thank you, thank you, thank you, Cathy __________________ 3/06 DX stage III er-pr-her2+++ breast, 1+node age 49 and 364 days 3XAC 4X taxol and herceptin continue herceptin one year bilat mastectomy w/TRAM 32 rads 9/08 recurrance 4 sternal nodes mediastinoscopy, able to remove 3 taxotere, carboplatin, herceptin, x6 continue herceptin indefinately 5/10 recurrance in same node/area mediastinoscopy, removed nodes added tykerb 27 rads 10/18/10 PET shows inflammation no active disease 8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node. D/C xeloda due to toxicity 12/5 PET scan clear 2/2012 colon blockage, breast cancer (never thought it could go there! thought I was constipated) start abraxane, herceptin, continue tykerb 10/2012 Kidney ablation (renal CA!) 3/2013 CT and biopsy R kidney (BC met to R kidney) 4/4/2013 Begin Kadcyla 7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm Sept 4-6 post op cyberknife Sept 23 ablation right kidney (blow up pesky breast ca met) Oct headaches MRI Oct 10 (only surgical changes ! Yay!) Short of breath. CT, pulmonary function, echo New crap in right lung heart good. Pooh! 12/13 DC kadcyla. Begin halaven 2/14 MRI brain NED Yay! 4/3/14 CT mostly stable but breast mets r kidney growing 4/16/14 ablation right kidney again Continue halaven, tykerb dc halaven gemzar? 2nd opinion May 14