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Cathya · 02-29-2016, 05:56 PM

Hi Jackie;

I was tested for Lynch and it proved to be negative. My doctors think the VUS (like you have for Lynch) is the key but it could be years before it is confirmed. My 31 year old daughter is in the middle of a BC scare right now. She had a pinch I guess you would call it on the side of one breast and saw our doctor. She will be going for a mammogram next week and I pray it's nothing but these rare variations are not to be sneezed at.

You take care. I guess you need regular colonoscopies too?

This all stems from my fathers mothers family. She died in the 1930's when my dad was 13 and she in her early 50's. He only had one sister with children and we lost touch with them so I have no other information.

Cathy

02-29-2016, 05:56 PM	#19
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: 10 years later non BRCA ovarian cancer Hi Jackie; I was tested for Lynch and it proved to be negative. My doctors think the VUS (like you have for Lynch) is the key but it could be years before it is confirmed. My 31 year old daughter is in the middle of a BC scare right now. She had a pinch I guess you would call it on the side of one breast and saw our doctor. She will be going for a mammogram next week and I pray it's nothing but these rare variations are not to be sneezed at. You take care. I guess you need regular colonoscopies too? This all stems from my fathers mothers family. She died in the 1930's when my dad was 13 and she in her early 50's. He only had one sister with children and we lost touch with them so I have no other information. Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18