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lk1 · 03-30-2012, 08:53 PM

Hi YanYan,

I was first diagnosed in 2009 with HER+++, ER/PR-. I had mastectomy, ACTH chemo and radiation. While on Herceptin, I noticed a very flat, pink rash on my reconstructed breast. EVERY doctor ( onc, surgeon, dermatologist, plastic surgeon etc) said it's not cancer. Onc sent me to a dermatologist for creams, antibiotics etc. I alone kept asking for a biopsy, and that's when I got my recurrance. Needless to say I fired my oncologist and since Jan 2011 go to Memorial SLoan Kettering. They did NOT recommend doing any surgery to remove skin or the reconstruction. They put me on Xeloda and Tykerb, and within a couple of months the rash faded. I am still on the tykerb and herceptin doing ok. I also still do the Herceptin every 3 weeks.

Maybe it's good to get a second opinion..There certainly is hope.
Wishing you all the best to you

-Laura

03-30-2012, 08:53 PM	#10
lk1 Senior Member Join Date: Dec 2010 Posts: 46	Re: IBC after initial dx of IDC? Hi YanYan, I was first diagnosed in 2009 with HER+++, ER/PR-. I had mastectomy, ACTH chemo and radiation. While on Herceptin, I noticed a very flat, pink rash on my reconstructed breast. EVERY doctor ( onc, surgeon, dermatologist, plastic surgeon etc) said it's not cancer. Onc sent me to a dermatologist for creams, antibiotics etc. I alone kept asking for a biopsy, and that's when I got my recurrance. Needless to say I fired my oncologist and since Jan 2011 go to Memorial SLoan Kettering. They did NOT recommend doing any surgery to remove skin or the reconstruction. They put me on Xeloda and Tykerb, and within a couple of months the rash faded. I am still on the tykerb and herceptin doing ok. I also still do the Herceptin every 3 weeks. Maybe it's good to get a second opinion..There certainly is hope. Wishing you all the best to you -Laura