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Old 05-07-2012, 05:34 PM   #2
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Re: Managing Energy and Diet

My experience is, with the physical activity you need to take cues from your body. I felt better and stronger when I could continue my regular walking regimen, even if I was a bit slow or didnt walk as far. But some days you're just too tired, and you have to respect that. Overall, there is evidence that physical activity will help you.

On the food thing, my first time around I ate pretty normally. This latest regimen, I've had problems with appetite, taste, and mouth sores. So it's been a challenge, and I've had some weight loss which is approaching unhealthy.

It's super important that you stay well nourished, as your healthy body (the rest of besides the cancer) is the resource you are bringing to the treatment party. Some things that have worked for me is puréed soups, smoothies of all types - but always including a good dose of whey protein and all healthy stuff. With "no" taste buds, it actually makes it easier for flavors to find those few buds who are still willing to play.


Stay strong.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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