HER2 Support Group Forums - View Single Post - Update on chrisy

Barbara H. · 05-04-2011, 04:04 PM

Hi Chrisy,
I am also sorry to hear that your treatment with TDM-1 may be winding down. Although it may no longer be working as efficiently on those cancer cells in the liver, it still may be working to a degree in other areas. It may also be a drug that you could try again once it is approved. Are tumor markers reliable for you? Have they also been increasing? I can certainly relate to your frustration and disappointment.

I would highly suggest that you go on Herceptin and Tykerb. It has been working for me since I stopped the TDM-1 trial in Oct. 09. It took me about two months to adjust to the Tykerb, but I actually find this combination to be more tolerable than TDM-1, considering that TDM-1 is an easy drug. You might also consider to target those spots before you decide to switch to Herceptin/Tykerb. I would try to stay with targeted therapy that would continue to provide you with a quality of life as much as possible.

Don't hesitate to post. We care about you and our thoughts are with you.

Kind regards,
Barbara H.

05-04-2011, 04:04 PM	#3
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Re: Update on chrisy - where's NED???? Hi Chrisy, I am also sorry to hear that your treatment with TDM-1 may be winding down. Although it may no longer be working as efficiently on those cancer cells in the liver, it still may be working to a degree in other areas. It may also be a drug that you could try again once it is approved. Are tumor markers reliable for you? Have they also been increasing? I can certainly relate to your frustration and disappointment. I would highly suggest that you go on Herceptin and Tykerb. It has been working for me since I stopped the TDM-1 trial in Oct. 09. It took me about two months to adjust to the Tykerb, but I actually find this combination to be more tolerable than TDM-1, considering that TDM-1 is an easy drug. You might also consider to target those spots before you decide to switch to Herceptin/Tykerb. I would try to stay with targeted therapy that would continue to provide you with a quality of life as much as possible. Don't hesitate to post. We care about you and our thoughts are with you. Kind regards, Barbara H.