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Old 10-01-2010, 10:01 AM   #14
v-ness
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Join Date: Nov 2009
Location: western ma
Posts: 280
Re: 2 years vs. 1 year on Herceptin

hi das.

yes, i do appear to be a rare bird having the oncotype done while HER2+ but i did not think the test was simply to determine whether one should have chemo or not. that i was having chemo was a given and i wanted it. perhaps i am mistaken, but i believe that since it is done on a molecular level you also get the benefit of knowing how likely your own personal cancer is to recur. i thought that valuable. perhaps more HER2's should be oncotyped, and maybe cost is yet another one of those factors on why they don't do it. while i was shocked at the 56, i am also glad i have all my information.

you said your tumor itched and i believe mine did too! a friend of mine has a dog who licked her head for 2 months straight after chemo - first time it ever did that. well, damned if she didn't have brain mets. once they were zapped the dog has stopped licking her head. so much we don't know about cancer....

i was not post-menopausal when treatment started last october although i had a partial hysterectomy the january before. chemo plunged me into it. i just had my other ovary out in august because of my mom's ovarian cancer tumor death. too scary for comfort. so now i am post-menopausal BUT my oncologist dismayed me by saying i still have to stay on tamoxifen until april, the full year. since i am pretty much managing the bloody hot flashes with effexor, i am just going along with it. i also get cold flashes, which i never knew existed before. sucks to get old, as my husband used to say.

thanks on the congratulations, it means a lot. in a world without my husband or mom anymore i've found i reach out to a lot wider circle of people than i ever did before for moral support. good luck to you in your treatment, may it go as well as mine. valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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