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Re: Brain mets but no systemic disease
Lani! Thank you so much for posting! You are a wealth of knowledge and analogies (love them). So scary that any time we can awaken "the sleeping giant" and mets can show up.
Amy- I am considering Tykerb. Just waiting on my next test result. So far , I'm stable since Jan so I don't really feel like jumping into chemo. Ick! I have a bone scan coming up, too.
I actually feel fine (relative term). No headaches. Just post surgery and rads pain, oh, and that darn lymphedema. Do I "wait and see"? Or should I bug my onc about testing my bone marrow? How is bone marrow cancer treated if they are unreachable with systemic treatment? Sorry, feeling a little confused.
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June 2013 DX Stage 3 Idc, rt breast, er/pr-, her2+++
PET/CT/Brain MRI clear
ACTHP until Dec 2013
BMX Dec 2013
28 Rads Feb 2014
Exchange surgery June 2014
Herceptin end Sept 2014
Headaches start Oct 2014
CT body clear Nov 2014
Brain MRI 4 lesions Nov 2014
SRS via LINAC in Dec 2014
Rt side infection, hospitalized, lost right implant on Jan 1, 2015
Jan 14 2015 MRI brain lesions shrinking
Jan 27 2015 Re-start herceptin every 3 weeks
Feb 2015 CT/PET Body clear
Re-start Lymphedema treatment April 2015
Breast MRI clear April 2015
Brain MRI April 2015 - shows everything stable, nothing new (whew)
CT scan June 2015 - clear
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