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Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease
Just got dx with lepto. I want the intrathecal Herceptin trial. Anyone with any info to expedite getting into this trial PLEASE help. I am terrified. Anyone been through this I'd love to talk.
Thank you very much
Lisa. (calisa is just an onscreen name)
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Dx in 1998 - 27 yrs old
Triple positive
1.1 cm tumor with DCIS. Mastectomy ACT followed by Tamoxifen
Recurred 2000 to lymph nodes in axilla and bones
Rads- more chemo plus one year of Herceptin
Recurred to more bones- lots of rads to bones
32 or more different chemo combos since 2001
Found to be ER-/PR-
Brain met 2007- 5 more to follow all treated with gamma knife latest one 3 cm on brain stem treated April 25
5/1/12 irinotecan,tykerb,Herceptin,xgeva
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