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michka · 06-06-2011, 11:50 PM

Thank you so much for your answers. Sometimes I feel so alone and you bring me courage and hope by your posts. I can't write all the side effects and problems I had since surgery and then after starting Navelbine or you would take me for a real nut.Tricia, thank you for reporting about Navelbine. I had horrible side effects nobody has. But your post made me think I was not just imagining things.
But this is the latest story: in march they saw 3 mets and 2 very small ones by this powerful 3 Tesla MRI. And you know what they did? They took out 2 mets by resection and the 2 very small ones by RFA and nodes. They FORGOT to take out a big one that was 12mm. On the new MRI I had on friday it is there, in the same place, and it is the same size. I was operated in the biggest cancer center in France Institut Gustave Roussy. My onc kept reading the operation report and wanted to kill the surgeon although he tried to be positive and not to show it. He said "well the good news is that it did not grow and nothing new appeared". He suggested Cyberknife or RFA. He prefers Cyberknife. I am reluctant. Why not celio or RFA?
The other thing it showed is that the treatment is not really working although it stabilized the situation. So I asked to throw in Tykerb at a dose of 3 and Faslodex on top of Herceptin and Navelbine. The good thing in France is that it is the doctor who decides. He agrees until we get this STUPID MET blasted and then if there is nothing else just stay with Herceptin Tykerb and Faslodex.
I am going for a PET/SCAN next Wednesday because they always want the full picture before operating. I know the liver is going to light up all over and be difficult to read but it will show the lungs and bones. Please think of me and hope I "only" have this liver met.
I must admit I can't see myself again on an operation table. But I know I will because so many women here are courageous and give me strength. I hope my body will follow.
And if this plan doesn't work I will go anywhere in the world for a TDM1 trial. There are some in Europe and in France.
Tricia, I hope you can go back to Halaven soon.
Love to all.
Michka
PS: Rich,yes, I wrote HER3+ that's how they wrote it on my pathology report. It means HER2+++
Do you know if I can have Faslodex with chemo? There seems to be discussions between oncs about that.

06-06-2011, 11:50 PM	#17
michka Senior Member Join Date: Feb 2007 Location: Paris, France Posts: 858	Re: Lost Thank you so much for your answers. Sometimes I feel so alone and you bring me courage and hope by your posts. I can't write all the side effects and problems I had since surgery and then after starting Navelbine or you would take me for a real nut.Tricia, thank you for reporting about Navelbine. I had horrible side effects nobody has. But your post made me think I was not just imagining things. But this is the latest story: in march they saw 3 mets and 2 very small ones by this powerful 3 Tesla MRI. And you know what they did? They took out 2 mets by resection and the 2 very small ones by RFA and nodes. They FORGOT to take out a big one that was 12mm. On the new MRI I had on friday it is there, in the same place, and it is the same size. I was operated in the biggest cancer center in France Institut Gustave Roussy. My onc kept reading the operation report and wanted to kill the surgeon although he tried to be positive and not to show it. He said "well the good news is that it did not grow and nothing new appeared". He suggested Cyberknife or RFA. He prefers Cyberknife. I am reluctant. Why not celio or RFA? The other thing it showed is that the treatment is not really working although it stabilized the situation. So I asked to throw in Tykerb at a dose of 3 and Faslodex on top of Herceptin and Navelbine. The good thing in France is that it is the doctor who decides. He agrees until we get this STUPID MET blasted and then if there is nothing else just stay with Herceptin Tykerb and Faslodex. I am going for a PET/SCAN next Wednesday because they always want the full picture before operating. I know the liver is going to light up all over and be difficult to read but it will show the lungs and bones. Please think of me and hope I "only" have this liver met. I must admit I can't see myself again on an operation table. But I know I will because so many women here are courageous and give me strength. I hope my body will follow. And if this plan doesn't work I will go anywhere in the world for a TDM1 trial. There are some in Europe and in France. Tricia, I hope you can go back to Halaven soon. Love to all. Michka PS: Rich,yes, I wrote HER3+ that's how they wrote it on my pathology report. It means HER2+++ Do you know if I can have Faslodex with chemo? There seems to be discussions between oncs about that.