Thread: Just curious
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Old 01-22-2012, 06:24 PM   #10
sassy
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Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
Re: Just curious

The first onc I saw was very kind and caring and told me if there was anything I wanted to do, get it done in the next ten years. When I asked if there was something about my cancer I didn't know, he replied "Oh, no--no". At that point my dx was stage two ER/PR positive-nothing on HER2 because I had not been tested.

Needless to say the ten year time line sent up all kinds of alerts and prior to staring treatment I decided to switch to a facility at a major research center. Good choice because when I heard about the release of herceptin on the national news and thought my cancer sounded very much like it, I asked my new onc (who did not realize I had not been tested) about it, I was immediately tested and stepped into that treatment protocol with Herceptin/Taxol as I had just finished A/C.

I had only one onc through initial treatment, then changed to a different one who had been trained by my onc and was at a facility closer to my home. Good decision there too, he was cutting edge and gave me treatment 7 years ago that are just now becoming the standard of care. As a researcher he was up to date on new developments.

I would want my onc to know me and see me. Your treatment should be a collaboration between you and your doctor, not a hit or miss by whomever happens to be there at the time.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!

Last edited by sassy; 01-23-2012 at 07:11 PM..
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