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Old 02-06-2012, 07:07 PM   #4
phil
Senior Member
 
Join Date: Nov 2010
Posts: 393
Re: Anyone on TDM1???

My wife is on t dm-1, doing great in her 15th month . Very effective w/ strong her2 overexpression. great quality of life, no hair loss, nausea, etc. I dont think you lose hair on pert either. Its an anti-body , like herceptin. Not a chemo. When Lorraine first started t dm-1, at a 3.6 dose level, she got chills , fever for a couple days. She did have a steady , gradual platelet drop, about 30 % + do. Eventually she reduced dose to 3.0, and that has worked great. 7 tumors in liver, 1 on adrenal gland, 1 on right kidney, 1 on bile duct, ALL GONE ! You can see her in our youtube video, " FDA Blocks Life-Saving Cancer Drug ", Part 4. Look at Peter in Part 3, hes on a trial w/ t dm-1, pert. and taxol. Great results after just 3 doses.
It is abreakthrough drug, first of its kind, few s/e and blows up her2. With pertuzumab further weakening the cancer cells, I think t dm-1 will work even better, at lower doses.
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