[waterdreamer]

I am currently on a TDM-1 trial and I would love to hear from those of you who have been on it, what your side effects were and how long you were NED on it. Also if you did progress, what your next treatment option was.
These are my side effects after first treatment:
Neutropenia, platelets dropped from 220 to 47 a week later and then back upto 140 two weeks after chemo.
Menorrhagia, the heaviest periods that I have ever had in my life, lasting 8 days.
Cramping in my fingers and toes.
Loss of appetite, first week after treatment, returned with a revenge in 2nd and 3rd week.

I am having great difficulty getting much info on this topic, so any feedback is much appreciated.

Thanks
Fern