HER2 Support Group Forums - View Single Post - Insurance Company Does Not Want to approve TYKERB

IRENE FROM TAMPA · 10-14-2009, 04:04 PM

Sheila

I am so sorry to hear what you are going through. I can completely understand, as fighting all of this red tape is something I have had to undergo lately with trials.

Since I was kicked off of the DMI trial due to my bilirubin (and my latest blood work showed it is now down to normal, I am beginning Herceptin long with Tykerb and my insurance company did not give me any trouble just with the tykerb. I did not know that it has to be in combination with Xeloda.??

I wish you all of the luck in getting it. Like the others have said, have your onc. check on it for you.

I am so angry myself Sheila. I did so well on the DMI and since I have been off, I now have 6 tumors back in my liver. I understand Genetech's position, but give me a break. I found something that shrunk 16 tumors (never happened to me before ) and now look. My nerves are so frazzled that I am on the verge of tears always , so I know what you are going through.

Take care my friend - there will be a resolve for you.

10-14-2009, 04:04 PM	#46
IRENE FROM TAMPA Senior Member Join Date: Oct 2005 Location: TAMPA, FL Posts: 568	Re: Insurance Company Does Not Want to approve TYKERB Sheila I am so sorry to hear what you are going through. I can completely understand, as fighting all of this red tape is something I have had to undergo lately with trials. Since I was kicked off of the DMI trial due to my bilirubin (and my latest blood work showed it is now down to normal, I am beginning Herceptin long with Tykerb and my insurance company did not give me any trouble just with the tykerb. I did not know that it has to be in combination with Xeloda.?? I wish you all of the luck in getting it. Like the others have said, have your onc. check on it for you. I am so angry myself Sheila. I did so well on the DMI and since I have been off, I now have 6 tumors back in my liver. I understand Genetech's position, but give me a break. I found something that shrunk 16 tumors (never happened to me before ) and now look. My nerves are so frazzled that I am on the verge of tears always , so I know what you are going through. Take care my friend - there will be a resolve for you. __________________ Irene from Tampa 1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU 1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER TREAT: STEM CELL REPLACEMENT/HERCEPTIN. 2002 - RECUR TO LIVER TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA. 2004 - TUMORS STILL IN LIVER TREAT: RFA TO LIVER STABLE UNTIL 2004 - TUMOR PROGRESSION IN LIVER. TREAT: RESECT HALF OF LIVER. 2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER. TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON THIS TRIO. STARTED ON ABRAXANE. 2006 - PROGRESS WITH 2ND TUMOR GROWTH. TREAT: AUG. BEGAN ON TYKERB/XELODA TRIAL. CONSIDERED STABLE TO DATE. 2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO PROGRESS STARTING TYKERB/AVASTIN. NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH IN ABDOM. AND TWO NEW TUMORS IN NECK AREA. BEGAN HERCEPTIN/AVASTIN/TAXOTERE Feb 08 - Ixempra/Xeloda June 08 - Her/DM1 trial *"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO* *NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."*