You are an amazing guy---so happy for your family that Barb at least gets a chance at a drug that might work. That is all any of us want--just a chance. Could they make this any more stressful?
I wonder if you would be willing to share the letter that finally got compassionate use approved for your wife. If approval doesn't happen soon I am going to try this route and I would like to see how to write a request that gets a yes answer. Thank you. My e-mail is
nana@lamarca.org.
Your family is in my prayers.