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Re: Anxiously Waiting
Finally heard from Barbs doctors office today, the FDA finally approved her for the TDM-1 compassionate access. We were told some papers had to be signed by lawyers representing the practice administering the drug which should happen in the next 24 to 48 hours and we should see the drug here next week. We canceled here scheduled treatment today for Navelbine and Herceptin knowing that she wouldnt be able to do TDM-1 soon if she had Herceptin today. She and I are excited to get this in her system and were praying it does what its designed to do. Thanks again for all the encouraging words.
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Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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