[Jackie07]

[Introduced to one of our new members this thread which Jean had started in January. Then I noticed SoCalGal's tally (145 years for all 33 members) back in March. Thought I'd double check and add the ones after her posting. And I came up with 220 years and three months. I also noticed that many other Stage IV sisters are not on the list - the founder of this support group, Christine (NED 10 years) and AndiBB (NED 12 years), to name just a couple.

And it suddenly downed on me that I have survived my first diagnosis of stage I for 8 years. My recurrence in 2007, a Stage IIb, was caused by a series of failures of the medical staff - the surgeon thought she had had a clean margin, she didn't; the radiologist thought the shadow on the mammograms was 'scar tissue', it wasn't; my oncologist thought I was 'cured', he was wrong; my family doctor thought I was hypochondriac, he was also wrong ...

Will I have another recurence and become stage IV one of these days? Nobody knows. But just knowing the fact that so many of our stage IV sisters have beat the odds/on maintenance/receiving active treatment gives me confidence that whatever happens in the future, there is hope.

Thank you, stage iv sisters, for sharing your fighting spirit and triumph with us. 6-15-2011]

Name_________(Initial Dianosis) Stage IV Diagnosis_________Triumph years since Stage IV ___NED = No Evidence of Disease

Adriana Mangus_____________(June 1994) July 2003 Lung_________________7 year 11 months and counting
Ahoff ________________________________May 2010 IBC___________________1 year 6 months and counting
Angela R_______________(2009)April 2011________________3 months and counting
Asahizuru________(1990, 1996) 2002 Bones_______________9 years and counting
Barbara H______________(1998)May 2004 Brain___________ 7 yrs 2 months and counting NED
Ceesun (Cathy)______________ 5 years__________________5 yrs and counting (as of 6-27-2011)
Chelee_________(Dec. 2005 IIIA) Sept2009 Bone___________5 yrs 7 months and counting
Chrisy______________(June2001)Sept. 2004 Liver__________6 yrs 10 months and counting
Colleen007_____________________________Oct. 2005 Liver, spine, femur ____5 yrs 9 months and
counting
CoolBreeze_________(Aug 2009) May 2011 Liver____________2 months and counting
CourtneyL ___________________April 2008 Liver Lung (NED) Bone Brain____3 yrs 3 months and counting
DEBBIE S____________________Oct. 2004 Liver ___________6 yrs 9 months and counting
Deena H_________(March 2010) Oct. 2010 Lung____________9 months and counting
DMWARN] [wife of]________________(1999)2000 Spine Lung________________11 yrs and counting
DianaMK ___________(Dec 2006) June 2010 Skin Lung________1 yr 1 month and counting NED
DQ1_______________(May 2009)Feb 2011 Mediastinal nodes Lung___5 months and counting
Emelie B_____________________(Nov. 2006)Jan. 2010 Sternum lung liver bone______1 yr 6 months and counting (14m NED)
Fauxgypsy___________________Feb 2007 Liver______________4 yrs 5 months and counting
Flossie_____________(Jan 2006) July 2008 Brain Rib neck______3 yrs and counting
pibikay (Hema) _________(2010)March 2011Vert. Liver_______4 months and counting
Hraby73 ____________________April 2011 Liver Lungs________3 months and counting
Hutchibk____________________(Nov. 2003)Aug. 2005 Chest nodes Bone Brain_______5 yrs 11 months and counting
Jenan_____________(June 2010 IIIA) April 2011 Brain________3 months and counting
Joan M_______________________(Sept.2003) Jan. 2007 Lung_____________________4 yrs 6 months and counting
Kathy T________________(1985) Jan. 2003 Bone_____________8 yrs 6 months and counting
Kavy_______________(April 2005)Nov. 2005 Lung Liver________5 yrs 8 months and counting
KDR_________________________June 2010 Liver____________1 yr 1 month and counting (4 m NED)
Kim in CA____________(Feb 1997)Sept 2001 Liver_____________9 yrs 10 months and counting (6 yr NED)
Kim in DC____(Aug 1998) 2004IBC Feb. 2008 Skin Sternum______3 yrs 5 months and counting
Kmswilson __________(Dec 2010) Jan 2011 Liver Bones________6 months and counting
Krisvell________________________(June 2009) Jan. 2011 Brain _________________6 months and counting
Lauriesh (Laurie)________________(July 2010) 2 Liver mets(RFA)________________1 year and counting (4 months NED)
Linda b_______________________Jan. 2007_________________4 yrs 6 months and counting
Lori R________________________Oct. 2007 Liver_____________3 yrs 7 months and counting
Mamacze _________________(2001)2004 Liver and lungs_______7 yrs and counting NED
Marilyn___________________(2000) July 2001 Bones__________10 yrs and counting
Mary L________________(Oct 2003) July 2004 Skin____________7 yrs and counting (NED 3yr 9 m)
Missyw________________(Jan. 2001) Aug. 2006 Liver__________4 yrs 11 months and counting
Mtngrl (Amy)___________(April 2011)May 2011 Liver___________2 months and counting
Nancy L___________________(2004) Feb. 2009_______________2 yrs 5 months and counting NED
Nsebesta_______________________May 2004 Liver____________7 yrs 2 months and counting NED since 2005
Pam P________________________(IBC June 2001) Sept. 2002 Bone___________________8 yrs 10 months and counting
PatE___________________________Oct 2007 Liver spine________3 yrs 9 months and counting (NED)
Radiant __________________(2005) 2010 Liver & Soft Tissue Mediastinal nodes___1 yr 7 months and counting
Schoolteacher (Amelia)____________Nov 28. 2007_____________3 yrs 7 months and counting (NED since 4-16-2008)
Sheila______________(Feb. 2002)Sept. 2003 Neck nodes___________________________7 yrs 10 months and counting
Sherryg683__________________Dec. 2005 Lungs______________5 yrs 7 months and counting
SoCalGal___________(1996; 2002) March 2007 Lung Sternum 2008 NED in Brain_____4 yrs 4 months and counting
StephN___________(Sept 2000) Jan 2002 Liver________________8 yrs 6 months and counting
SuThorn______________________Sept. 2007 Liver_____________3 yrs 10 months and counting (NED since 1-2008)
tammymarie1971___(Dec 2001) 2004 liver 2005 Spine/Hip_______7 yrs 4 months and counting
Tonya__________________________________Aug 2006 Liver_______________________4 yrs 11 months and counting
TriciaK_____________(1985) 1990 spine, 2004, 2010 lung_______21 years and counting
Trish__________________________(May 2004) Dec. 2006 Liver______________________4 yrs 7 months and counting
Unregistered_________________Jan. 2007___________________4 yrs 6 months and counting
Vicky_______________________March 2011 Liver Spine_________4 months and counting
Vivienne [Mom of]____________March 2011 Liver______________4 months and counting
Yankeebikachic_____(April 2006) July 2008 Nodes______________3 yrs and counting (NED)

Total 60 members* and 284* years as of July 9, 2011

From NancyL: "Go to http://www.mbcnetwork.org/ and read stories about women who have been metastic for many many years. I also have a good friend, Stage IV for 11 years, continuously on Herceptin and doing well."

*Including Christine and AndiBB and those who have posted on this thread.