[Jackie07]

[Introduced to one of our new members this thread which Jean had started in January. Then I noticed SoCalGal's tally (145 years for 33 members) back in March. Thought I'd double check and add the ones after her posting, and I came up with 220 years and three months. I also noticed that many other Stage IV sisters are not on the list - the founder of this support group, Christine (NED 10 years) and AndiBB (NED 12 years), to name just a couple.

And it suddenly downed on me that I have survived my first diagnosis of stage I for 8 years. My recurrence in 2007, a Stage IIb, was caused by a series of failures: the surgeon thought she had had a clean margin, she didn't; the radiologist thought the shadow on the mammograms was 'scar tissue', it wasn't; my oncologist thought I was 'cured', he was wrong; my family doctor thought I was hypochondriac, he was also wrong ...

Will I have another recurence and become stage IV one of these days? Nobody knows. But just knowing the fact that so many of our stage IV sisters have beat the odds/on maintenance/receiving active treatment gives me confidence that whatever happens in the future, there is hope.

Thank you, stage iv sisters, for sharing your fighting spirit and triumph with us. 6-15-2011]

Name___________(Initial Dianosis) Stage IV Diagnosis_______________Triumph years since Stage IV NED = No Evidence of Disease

Trish________________(May 2004) Dec. 2006 Liver__________________4 yr 6 month and counting
Pam P___________(IBC June 2001) Sept. 2002 Bone__________________8 yr 9 month and counting
Colleen007____________________Oct. 2005 Liver, spine, femur _______5 yr 8 month and counting
Missyw_____________(Jan. 2001) Aug. 2006 Liver___________________4 yr 10 month and counting
Joan M_____________(Sept.2003) Jan. 2007 Lung____________________4 yr 5 month and counting
Kathy T_________________(1985) Jan. 2003 Bone____________________8 yr 5 month and counting
Nancy L_________________(2004) Feb. 2009_______________________2 yr 4 month and counting NED
Chelee__________ (Dec. 2005 IIIA) Sept2009 Bone___________________5 yr 6 month and counting
Lori R________________________Oct. 2007 Liver___________________3 yr 6 month and counting
Deena H__________(March 2010) Oct. 2010 Lung____________________9 month and counting
Barbara H_______________(1998)May 2004 Brain___________________7 yr 1 month and counting NED
Chrisy______________(June2001)Sept. 2004 Liver____________________6 yr 9 month and counting
Sheila______________(Feb. 2002)Sept. 2003 Neck nodes______________7 yr 9 month and counting
Nsebesta_____________________May 2004 Liver____________________7 yr 1 month and counting NED since 2005
Mamacze ________________(2001)2004 Liver and lungs_______________7 yr and counting NED
Ceesun___________________over 4 years__________________________4 yr and counting
Hutchibk____________(Nov. 2003)Aug. 2005 Chest nodes Bone Brain___5 yr 10 month and counting
Emelie B______________(Nov. 2006)Jan. 2010 Sternum lung liver bone__1 yr 5 month and counting (14m NED)
DEBBIE S______________________Oct. 2004 Liver ____________________6 yr 8 month and counting
Krisvell_____________(June 2009) Jan. 2011 Brain ____________________5 month and counting
SuThorn______________________Sept. 2007 Liver____________________3 yr 9 month and counting NED since 1-2008
CourtneyL ____________________April 2008 Liver Lung (NED) Bone Brain_3 yr 2 month and counting
Hema__________________(2010)March 2011Vert. Liver________________3 month and counting
Schoolteacher_________________Dec. 2007__________________________3 yr 6 month and counting
SoCalGal___________(1996; 2002) March 2007 Lung Sternum 2008 NED in Brain_____4 yr 3 month and counting
Mary L_______________(Oct 2003) July 2004 Skin_____________________6 yr 11 month and counting (NED 3yr 8 m)
PatE__________________________Oct 2007 Liver spine________________3 yr 8 month and counting (NED)
KDR___________________________June 2010 Liver____________________1 yr and counting (4 m NED)
Flossie_________________(Jan 2006) July 2008 Brain Rib neck___________2 yr 11 month and counting
Marilyn___________________(2000) July 2001 Bones__________________9 yr 11 month and counting
Kim in CA______________(Feb 1997)Sept 2001 Liver___________________9 yr 9 month and counting (6 yr NED)
Adriana Mangus________(June 1994)July 2003 Lung___________________7 yr 11 month and counting
Kim in DC______(Aug 1998) 2004IBC Feb. 2008 Skin Sternum____________3 yr 4 month and counting
Fauxgypsy_______________________Feb 2007 Liver___________________4 yr 4 month and counting
DianaMK _____________(Dec 2006) June 2010 Skin Lung_______________1 yr and counting NED
Tonya_________________________Aug 2006 Liver____________________4 yr 10 month and counting
Asahizuru____________(1990, 1996) 2002 Bones______________________9 yr and counting
Vivienne [Mom of]_______________March 2011 Liver_________________3 month and counting
Radiant __________________(2005) 2010 Liver & Soft Tissue Mediastinal nodes____1 yr 6 month and counting
Ahoff __________________IBC May 2010___________________________1 yr 6 month and counting
Sherryg683__________________Dec. 2005 Lungs_____________________5 yr 6 month and counting
Kavy_____________(April 2005)Nov. 2005 Lung Liver__________________5 yr 7 month and counting
DQ1______________(May 2009)Feb 2011 Mediastinal nodes Lung_______4 month and counting
Unregistered________________Jan. 2007____________________________4 yr 5 month and counting
[DMWARN] [wife]______(1999)2000 Spine Lung______________________11 yr and counting
Linda b_____________________Jan. 2007____________________________4 yr 5 month and counting
Angela R______________(2009)April 2011___________________________2 month and counting
Hraby73 ___________________April 2011 Liver Lungs_________________2 month and counting
Kmswilson _________(Dec 2010) Jan 2011 Liver Bones_________________5 month and counting
Mtngrl (Amy)______(April 2011)May 2011 Liver______________________1 month and counting
Vicky_______________________March 2011 Liver Spine_______________3 month and counting
tammymarie1971___(Dec 2001) 2004 liver 2005 Spine/Hip_____________7 yr 3 month and counting
StephN___________(Sept 2000) Jan 2002 Liver_______________________8 yr 5 month and counting
Yankeebikachic_____(April 2006) July 2008 Nodes_____________________2 yr 11 month and counting (NED)
CoolBreeze_________(Aug 2009) May 2011 Liver______________________1 month and counting
TriciaK_____________(1985) 1990 spine, 2004, 2010 lung_______________21 years and counting
Jenan______________(June 2010) April 2011 Brain____________________2 month and counting


Total: 57 members (in the order of their postings on this thread) and 261 years as of June 26, 2011

From NancyL: Go to http://www.mbcnetwork.org/ and read stories about women who have been metastic for many many years. I also have a good friend, Stage IV for 11 years, continuously on Herceptin and doing well.