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Old 01-11-2010, 12:54 PM   #33
KristyAnn
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Join Date: Nov 2009
Posts: 11
Re: Neratinib Clinical Trial

Im not sure of the mechanism of the diarrhea but nothing I tried could control it. IF you have side effects on neratinib they normally tell you to eliminate dairy as it seems to make everything a lot worse- and that was true for me.

160 mg is great- I had a weekend with no diarrhea this past weekend- first time since I started the trial in early October.

Kriss, There is a protocol for increasing the dosage back if it has been lowered - not sure of the "rules" but my nurse did say they probably would not try that with me because of the severity of the potassium and magnesium problems and their implications.

Kristy
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