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Old 02-09-2012, 07:41 AM   #27
KristinSchwick
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Join Date: Jun 2011
Location: Iowa
Posts: 231
Re: New Plan, New Chapter for progression

Shelia, Thanks so much for the update- I'd been thinking about you and praying for good news. I think the radiation will really help, but from what I remember- it is very tiring and causes alot of inflammation, making you feel worn down. The radiation feels alot like a sunburn that goes right through your body, but thankfully the symptoms don't start until about week 2. For your drive bring comfy clothes, nothing that presses or rubs on the area, I really liked shirts that buttoned in the front, but I had radiation to my chest and axilla. I'd suggest to schedule your daily radiation and drive when you are most awake and ask your team if there is the possibility of moving your appointment time on short notice, like if your having a rough day or are caught in traffic. I'd hate for you to be rushing through Chicago traffic, tired and worried about missing your appointment. Remember, all the radiation, chemo and therapies are worthless if you don't make it there in one piece.
Best of luck & love you!
Kristin
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[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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