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Lolly · 01-24-2008, 05:37 PM

Doug, I don't have anything to add on the cancer front as you seem pretty much up to speed there

Just want to tell you that a friend of ours who had fairly advanced MS by the time he started some of the newer treatments you mentioned has in the last several years been doing quite well. I also met a man at my treatment center who was getting treatment for very early MS that had been diagnosed 5 years previously by accident when he was having scans for an elective surgery. He had started treatment then, and he said he didn't even have symptoms for most of 5 years since being diagnosed, and was only just starting to "feel" that it was time for another infusion (at that point he was getting treatment every 6 months) because he would be feeling tired and just sort of off. So there's great hope for you to be able to treat both diseases successfully!

<3 Lolly

01-24-2008, 05:37 PM	#18
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	Doug, I don't have anything to add on the cancer front as you seem pretty much up to speed there Just want to tell you that a friend of ours who had fairly advanced MS by the time he started some of the newer treatments you mentioned has in the last several years been doing quite well. I also met a man at my treatment center who was getting treatment for very early MS that had been diagnosed 5 years previously by accident when he was having scans for an elective surgery. He had started treatment then, and he said he didn't even have symptoms for most of 5 years since being diagnosed, and was only just starting to "feel" that it was time for another infusion (at that point he was getting treatment every 6 months) because he would be feeling tired and just sort of off. So there's great hope for you to be able to treat both diseases successfully! <3 Lolly __________________ Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation. Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.