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Re: Need thoughts from anyone who had a recurrence to skin
Thanks Ladies for putting your valuable experience! I saw my oncologist yesterday and he mentioned even if my diseases becomes metastetic surgery to remove local skin mets is still a better choice for my own good.
Then i thought maybe if i didn't have a skin sparing mastectomy or didn't have expanders put in at the time of surgery, my recurrence would not have happened or maybe a much later time. Maybe it is for our own good that we wait a while before reconstruction. But again this recurrence gets me on xeloda and tykerb which maybe killing the residual cancer cells left from last surgery.
My skin mets have been stable on xeloda and tykerb since April . My oncogolist said we have the best odds if we can knock down as many cancer cells as possible prior to surgery. Many times if surgery is done too soon, recurrece happens fast. But it gets tricky with the time because we don't know when cancer cells become resistant.
Socalgal,i am sorry to hear about your progression. You did what you thought was right going to NY for treatment. I hope herceptin will continue to keep you stable. Did you check with Waterdreamer? She has been on TDM1 for almost 2 years and doing well. Maybe she can give you more info on the trial. She goes to UCLA for treatment.
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1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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