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Marily · 03-25-2006, 11:26 AM

Hi I am 6 year survivor, stage IV I am also Ned and on Herceptin just about 5 years. My Oncologist said I am her only one that has done this. It is really great to hear we are a growing group! Are you all continuing the Herceptin? I am very interested on this long term follow up. I talked to Dr Jim Lasker at Miraval and He encouraged me to see if any of the research Hospitals were doing any long term follow up, and if not to get someone interested. I called many places and Genenteck but no one was looking at long term effects .. I am very excited and will follow this thread with great interest. Hugs Marily

03-25-2006, 11:26 AM	#6
Marily Senior Member Join Date: Mar 2006 Location: Aurora CO Posts: 75	NED since 2000 Hi I am 6 year survivor, stage IV I am also Ned and on Herceptin just about 5 years. My Oncologist said I am her only one that has done this. It is really great to hear we are a growing group! Are you all continuing the Herceptin? I am very interested on this long term follow up. I talked to Dr Jim Lasker at Miraval and He encouraged me to see if any of the research Hospitals were doing any long term follow up, and if not to get someone interested. I called many places and Genenteck but no one was looking at long term effects .. I am very excited and will follow this thread with great interest. Hugs Marily Last edited by Marily; 05-05-2006 at 05:00 PM..