[fentonlady]

Hi I'm new to this site and finding this interesting reading - many thanks. I have a question I have been on Herceptin since June 04 for liver mets. I have been well and CT scans remain stable since Sept 04 when chemo finished but herceptin continued.

My oncologist is now suggesting I should try discontinuing herceptin and be monitored very closely. Very nervous. My questions are: is there evidence of longterm herceptin side effects? and is there evidence of progression of disease when herceptin discontinued after long term use?

Any advice/knowledge on evidence so I am more informed for my meeting with oncologist this Friday would be very welcomed.

My interpretation of NICE guidelines (I live in UK) is that as I have no progression of disease or have side effects then Herceptin treatment should continue. Any comments welcomed on this interpretation. Many thanks