HER2 Support Group Forums - View Single Post - How long have I go left? "I can’t go on. I’ll go on.”

sassy · 01-26-2014, 12:52 PM

Thanks for this article.

One point we especially should all remember is that new developments are taking place in treatment continually.

My prognosis changed in the first 3 months of being diagnosed because of the release of Herceptin. Statistically at diagnosis, I should have recurred within two years, and not lived to five.

I'M ALMOST NINE YEARS OUT AND NO RECURRANCE! Because of new developments in treatment.

Statistics change......

01-26-2014, 12:52 PM	#2
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	Re: How long have I go left? "I can’t go on. I’ll go on.” Thanks for this article. One point we especially should all remember is that new developments are taking place in treatment continually. My prognosis changed in the first 3 months of being diagnosed because of the release of Herceptin. Statistically at diagnosis, I should have recurred within two years, and not lived to five. I'M ALMOST NINE YEARS OUT AND NO RECURRANCE! Because of new developments in treatment. Statistics change...... __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!