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Cat · 07-15-2013, 01:51 PM

So I saw the neuro surgeon today and even though my brain thingys don't look like normal rounded mets, (they are band laying on the outer edges of the cerebellum, 2 of them) he can't imagine they aren't mets and in light of having kidney cancer he posed the possibility that they could be kidney mets which don't respond well to radiation. My best option is surgery to take them out and bioposy to know what we are looking at because I guess post treatment would be different too.
I have had 3 people tell me how good he is and I'm in good hands and I also feel comfortable with him. Instinct tells me he is good and I like him. My biggest fear is the after treatment. He said I may have balance issues which should be temporary and I'll be on the dreaded steroids. He had me start them since I have been getting headaches and I'm going on vacation Fri. (come hell or high water) returning Wed. and surgery on the 30th. There is something about going into the brain that is mind boggling but I know I'm not the first so I've measured how deep the water is and I guess I'll jump.
Please say a couple prayers and thank you for being there. Thinking positive and happy there is a plan.
Cathy

07-15-2013, 01:51 PM	#15
Cat Senior Member Join Date: May 2010 Posts: 184	Re: too many odd things So I saw the neuro surgeon today and even though my brain thingys don't look like normal rounded mets, (they are band laying on the outer edges of the cerebellum, 2 of them) he can't imagine they aren't mets and in light of having kidney cancer he posed the possibility that they could be kidney mets which don't respond well to radiation. My best option is surgery to take them out and bioposy to know what we are looking at because I guess post treatment would be different too. I have had 3 people tell me how good he is and I'm in good hands and I also feel comfortable with him. Instinct tells me he is good and I like him. My biggest fear is the after treatment. He said I may have balance issues which should be temporary and I'll be on the dreaded steroids. He had me start them since I have been getting headaches and I'm going on vacation Fri. (come hell or high water) returning Wed. and surgery on the 30th. There is something about going into the brain that is mind boggling but I know I'm not the first so I've measured how deep the water is and I guess I'll jump. Please say a couple prayers and thank you for being there. Thinking positive and happy there is a plan. Cathy __________________ 3/06 DX stage III er-pr-her2+++ breast, 1+node age 49 and 364 days 3XAC 4X taxol and herceptin continue herceptin one year bilat mastectomy w/TRAM 32 rads 9/08 recurrance 4 sternal nodes mediastinoscopy, able to remove 3 taxotere, carboplatin, herceptin, x6 continue herceptin indefinately 5/10 recurrance in same node/area mediastinoscopy, removed nodes added tykerb 27 rads 10/18/10 PET shows inflammation no active disease 8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node. D/C xeloda due to toxicity 12/5 PET scan clear 2/2012 colon blockage, breast cancer (never thought it could go there! thought I was constipated) start abraxane, herceptin, continue tykerb 10/2012 Kidney ablation (renal CA!) 3/2013 CT and biopsy R kidney (BC met to R kidney) 4/4/2013 Begin Kadcyla 7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm Sept 4-6 post op cyberknife Sept 23 ablation right kidney (blow up pesky breast ca met) Oct headaches MRI Oct 10 (only surgical changes ! Yay!) Short of breath. CT, pulmonary function, echo New crap in right lung heart good. Pooh! 12/13 DC kadcyla. Begin halaven 2/14 MRI brain NED Yay! 4/3/14 CT mostly stable but breast mets r kidney growing 4/16/14 ablation right kidney again Continue halaven, tykerb dc halaven gemzar? 2nd opinion May 14