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Old 01-06-2016, 02:30 PM   #13
annettchen
Senior Member
 
Join Date: Mar 2014
Posts: 95
Re: PSA: Get your brain scanned

@agness

I may be able to affort treatment outside Canada, but within limitations. We're definitely not millionaires. And:

1. Given they seem to multiply every time we take a look, my expectation is tat even with the 15 they currently see, it is highly likely that there are more that are simply not visible yet on MRI.

2. I am running out of time. While I am currently asyptomatic (or at least, there's no symptoms that are a dead give-away for brain mets), I feel like I am running out of time. I'm scared of WBRT, but even more scared of not doing anything for another appreciable amount of time.

I will just have to bite the bullet and move forward with this. I will let you know how I fare. In the meantime, I need to line up my ducklings for next steps when WBRT fails me.
__________________
Annette
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03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic)
04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol)
07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working
10/2014: STABLE!
01/2015: STABLE!
04/2015: STABLE!
08/2015: STABLE!
12/2015: BRAIN METS. BODY STABLE.
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