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Old 09-12-2007, 01:15 PM   #24
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Talking HAMCEPTIN...! That's a good one!

HAMCEPTIN! I love that, Brenda! Thanks for all the juicy facts re Chinese hamsters. I eat a turkey and Virginia HAM sandwich for lunch very often. Hmmm... Any connection there, ya think? I do believe that I have been obsessive/compulsive since foever. Long before Hamceptin, but -- my memory cannot be relied on, I have grimly learned. I adore laughing w/all you gals! Humor is the only way to face this dastardly disease.

After my mastectomy I found myself wondering if I could still do the breast stroke? I swear, the thought occurred suddenly. I pondered if I could still wear a double-breasted jacket. And, I was literally shocked to find that when I went for my mammography, post mastec, I was rewarded w/a bargain rate! UNILATERAL mammog??? You've got to be kidding me. You're not going to check my new tram flap breast?????? *I* think of that boob as a boob. *They* apparently think of it as *stomach tissue* I reported to Paul, astounded by the revelation. I asked him -- does that mean if GOD FORBID A HUNDRED GEZILLION TIMES they found canser in my left breast, I'd have *stomach canser*?????? Paul and I had a good laugh over that!!

BTW -- while in NY 9/5-10 I had my every 6 mnth transvaginal pelvic sonogram. AND MY OVARIES WERE PRONOUNCED *BEAUTIFUL*! THE very nicest compliment I have ever received!! And all else "looks the same", which is a good thing. A very good thing. Going for Hamceptin Fri... Have a rotten cold. Am always amazed when I get one, which is not often (but I did just fly in a petri dish of germs and stagnant air) that *JUST* a cold can feel so awwwwful! I am beyond fatigued (which is my new normal in genl). Low FOR ME red blood cell count and no more Aranesp, as I've been boosted by since '98, unless I dip below 11. Or is it now 10? 13-15 works for me, but it is a distant memory and an unattainable dream now I suppose. Such scary reports. Cancer center is being extremely careful. And besides, they tell me -- I'm not a chemo patient. I go to the chemo room and am accessed by a chemo nurse but I am receiving a *monoclonal antibody*. I get that. So, where is the monoclonal antibody room anyway??? And why don't they respect my low energy?! Well, we're all tired, they tell me. I get dressed and I need to lie down. Oh. I'm not *that* tired, I'm told w/fresh recognition. But soon they forget.

Going ev 3 wks for my Hamceptin is a joy, despite the fact that it is given at the canser center and I am surrounded by chemo patients who are where I was several X. My compassion for them is enormous, naturally. I realize that I am the healthiest patient in the room, for the most part. I am daily humbly grateful for that *gift*, to be sure! But, I am still a bc survivor who faces the bc drama all day, every day. True, I choose to do it generally w/joy and serenity, but still...

You know me -- always long-winded, w/much to share. Sorry if I'm digressing/rambling, but...
Had a stationery bike that I moved from Manhasset, Long Island to Boca and finally gave away. It remained stationery at all times. But now I'm thinking I'd love a WHEEL to tread, all of a sudden, upon reading this hilarious, yet informative, thread!
LET'S KEEP ON SMILING LADIES! It's the only route to joy and wellness I am sure. LAUGHING OUT LOUD every day is mandatory to NED. Just love y'all!!
Andi

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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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