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Old 09-30-2011, 07:12 AM   #2
norkdo
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Join Date: Jul 2011
Location: ottawa canada
Posts: 367
Re: rewrite breast cancer awareness message the way YOU want it to read

I want women to know about Breast Cancer Prevention....
that there is no such thing.
Even the thought of Breast Cancer Prevention is a sweet fiction like lighting a candle for Santa Clause each year.
We with HER2 Breast Cancer have been doing our self-exams for years, our mammograms only beginning at age forty, eating anti-cancer foods, listening to doctors tell us our mom's breast cancer was not the "familial kind" so we had nothing to fear (only BCRA or whatever it is called have to fear that..while not giving us that actual test) and feeling great relief when the follow up mammograms were negative (finding out years later they were false negative as HER2 lines the ducts silently for YEARS before bursting up into a late stage cancer) and all the smug B.C fundraisers were lying all along. Maybe not in certain people's cases....but if you have HER2 your breast cancer was likely undetectable til stage three or four.....and if your mammogram was a false negative....your take might be less "candle for santa claus" than "outright lying".
Prevention is impossible.
It isn't your fault if it happens.
Ovarian cancer and other cancers which cannot be detected early are like HER2 Breast Cancer. Not your fault. Not subject to reason and rational prevention.
My mom had breast cancer and was a reed-thin skinny health freak all her life who NEVER drank or smoked.
Not your fault.
Not your fault.
Not your fault.
Let me be clearer: if God forbid you get Breast or any other cancer: It is Not Your Fault.
You cannot avoid it. You cannot prevent it.
You are, however, our sister, and we are here for you. We pray for you, we pray for each other. And everyday we give thanks that we are on here, on this website, together, forever.
__________________
fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew."
found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet.
diagnosed may 10 2011

mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b.
her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one
chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals.
radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see.....
10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012.
Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh.


I have a blog where I document this trip and vent.
www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore
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