HER2 Support Group Forums - View Single Post

Cannon · 06-12-2009, 07:43 PM

Lisajean,

Welcome to the club no one wants to join. I'm so glad you found us -- this is the happening place for her2+. The people here have so much information and inspiration!

I had a similar presentation as you - multifocal, with largest 5 cm, and three positive nodes. You'll see my treatment below. I am glad to say, it's almost three years since my diagnosis. We have MANY long time survivors here, they are amazing.

No thoughts on the chest pain, except to agree about a 2nd opinion, any time you are not comfortable with the one you've got. I must say, my oncologist often told me that he was not worried about various things -- when I was -- and I trust him enough to be my guide.

It's a tough fight, and feeling bad is (often) part of the process -- you will get through it!

Rebecca

06-12-2009, 07:43 PM	#13
Cannon Senior Member Join Date: Oct 2007 Posts: 203	Lisajean, Welcome to the club no one wants to join. I'm so glad you found us -- this is the happening place for her2+. The people here have so much information and inspiration! I had a similar presentation as you - multifocal, with largest 5 cm, and three positive nodes. You'll see my treatment below. I am glad to say, it's almost three years since my diagnosis. We have MANY long time survivors here, they are amazing. No thoughts on the chest pain, except to agree about a 2nd opinion, any time you are not comfortable with the one you've got. I must say, my oncologist often told me that he was not worried about various things -- when I was -- and I trust him enough to be my guide. It's a tough fight, and feeling bad is (often) part of the process -- you will get through it! Rebecca __________________ Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++ Neoadjuvant A/C 4X Dose Dense 11/06 Bilateral Mastectomy (no choice on the right, my choice on the left) Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07 33 Rads Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier) Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause BRCA negative - lots of cancer in my family survivor of thyroid cancer also have Crohn's disease CT and bone scan say NED as of 5/13 dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35 1/13 Acute pancreatitis - are you kidding me? 9/13 started Humira for Crohn's. starting to have some energy again B12 and Vit D both needed supplementation Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years? 4/14 Kidney stones/blockage/infection - related to Crohn's Disease 5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year 6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.