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Old 06-12-2009, 01:35 AM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Post Need address to correct reconstruction

Hi ladies
4 months ago I went for my left breast reconstruction by "SGAP". It turned into a nightmare because of an undetected hemorrhage. This group gave me so much support that it made me feel better.
The first result was horrible. The reconstructed breast was enormous much too high on my chest and hanging on the side. And everything was tense. The surgeon said it was normal and he would fix all of that. He made me wait 4 months. I was scared stiff to go back but I did the day before yesterday. Well, the result is the same. It is horrible and I still cannot dress and even less wear a bra. I feel like Frankenstein.
I would like to get an opinion from a US hospital. Preferably on the east coast because I live in France.
Do you have any suggestions? I was thinking either of BWH in Boston or Sloan or Johns Hopkins in NY. Any thoughts?
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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