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Re: 10 years later non BRCA ovarian cancer
Hi Valerie;
I am definitely lucky as I had no symptoms at all. According to the pathology report it is a high grade serous carcinoma arising in a background of borderline tumour. I have an appointment with the oncologist next Friday and am wondering how to approach this. I am asking about Her2 and am also wondering about ER/PR. I'm wondering about genetic testing. They are sending me on but am thinking that I should have both my breast cancer and ovarian tumours tested and compared. I would be very interested in what your oncologist says and any ideas. You were so right to worry about this and take action. Honestly it never crossed my mind. How foolish in hindsight. I will post any info I get for sure.
Take care,
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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