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v-ness · 06-16-2015, 01:06 PM

cathy - i am sorry to read that you have to deal with cancer yet again but so happy to read that you caught the ovarian at stage 1. that is amazing, because usually it's caught so much later because of the lack of symptoms. my mom had a couple vague symptoms even when hers was late stage. i was worried about the ovarian cancer so i had my last remaining removed as soon as i could. unfortunately, mom's was a rare one - primary peritoneal - and you don't even need to *have* ovaries to get it. i would be really interested to hear if you find anything out about an association with her2. in fact, i might ask my oncologist, who was also mom's. there is one benefit to remaining on tamoxifen for the foreseeable future, and that is that my onco stays on top of me even beyond 5 yrs out. good luck to you, i hope the chemo goes well and you kick it! valerie

06-16-2015, 01:06 PM	#8
v-ness Senior Member Join Date: Nov 2009 Location: western ma Posts: 280	Re: 10 years later non BRCA ovarian cancer cathy - i am sorry to read that you have to deal with cancer yet again but so happy to read that you caught the ovarian at stage 1. that is amazing, because usually it's caught so much later because of the lack of symptoms. my mom had a couple vague symptoms even when hers was late stage. i was worried about the ovarian cancer so i had my last remaining removed as soon as i could. unfortunately, mom's was a rare one - primary peritoneal - and you don't even need to have ovaries to get it. i would be really interested to hear if you find anything out about an association with her2. in fact, i might ask my oncologist, who was also mom's. there is one benefit to remaining on tamoxifen for the foreseeable future, and that is that my onco stays on top of me even beyond 5 yrs out. good luck to you, i hope the chemo goes well and you kick it! valerie __________________ 8/09 - IDC 1.8 cm triple positive, lumpectomy left breast 10/09 began chemo (taxotere & carboplatin) and weekly herceptin. 1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010. 2/10 began 7 wks of radiation 6/10 mom dies of primary peritoneal ovarian cancer 8/10 got my last remaining ovary out 10/10 mammogram all clear 3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US needle biopsy proved the largest to be old inflamed cyst -phew! 7/10 switched to Arimidex 8/9 switched to Femara - allergic to arimidex Femara made me lose hair quickly so switched to Aromasin Aromasin made my hair fall out too and the bone pain was too much. back on Tamoxifen 1/2013. blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer. cancer's screwing with another man i love 2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!