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Cathya · 06-12-2015, 06:30 PM

Hi Tricia, Sarah, Jacqueline and Amy;

Thank you for your wishes. I know I am so very lucky to have this caught at such an early stage. I was told that I likely wouldn't have had any symptoms until Christmas and that my situation would not have been good. This is why I wanted to post this. As a triple positive breast cancer survivor it never crossed my mind to worry about ovarian cancer. I was told that my type of breast cancer spread to the lungs, liver, bones and brain mostly. I know that this diagnosis is not a spread of the breast cancer but I just can't help but concur with my doctors suspicions that there is some genetic component or (me now) that perhaps hormones or even Her2 that wasn't considered 10 years ago is involved. I don't know and am just starting to look into it but I will post any information I come up with. If 23andme missed this I would be horrified so I will be glad to find that out. Imagine who else could be affected but I will not make that assumption without proof.

This site has always been a godsend to me over the years and I have been monitoring over the years. I hope I can find a way to give back a little information that might help someone...one never knows. This crazy disease.

God bless

Cathy

06-12-2015, 06:30 PM	#7
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: 10 years later non BRCA ovarian cancer Hi Tricia, Sarah, Jacqueline and Amy; Thank you for your wishes. I know I am so very lucky to have this caught at such an early stage. I was told that I likely wouldn't have had any symptoms until Christmas and that my situation would not have been good. This is why I wanted to post this. As a triple positive breast cancer survivor it never crossed my mind to worry about ovarian cancer. I was told that my type of breast cancer spread to the lungs, liver, bones and brain mostly. I know that this diagnosis is not a spread of the breast cancer but I just can't help but concur with my doctors suspicions that there is some genetic component or (me now) that perhaps hormones or even Her2 that wasn't considered 10 years ago is involved. I don't know and am just starting to look into it but I will post any information I come up with. If 23andme missed this I would be horrified so I will be glad to find that out. Imagine who else could be affected but I will not make that assumption without proof. This site has always been a godsend to me over the years and I have been monitoring over the years. I hope I can find a way to give back a little information that might help someone...one never knows. This crazy disease. God bless Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18