Thread: So Very Upset
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Old 05-13-2015, 09:27 PM   #9
Pamelamary
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Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
Re: So Very Upset

Dear Cathy,
Like everybody else, I am saddened by your news, and can understand the hurt and disappointment. However, don't waste time and energy looking for reasons. Shit happens..... I don't think anybody knows yet why some of us respond to different treatments in different ways; it seems cancer cells have an amazing ability to adapt and change, challenging us constantly.
You have shown such strength and courage. We will all be thinking of you and hoping the new treatment works wonders quickly.
Best wishes... Pam
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Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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