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Cathya · 03-19-2018, 12:23 PM

I would like to reiterate what Sarah said. Just recently an oncologist was shocked to find out that I had herceptin in 2005. It was just brought into Canada that year and I remember women driving to the US and paying $50,000 a year to get treatments. I had asked to be tested as it wasn't a standard test at that time. Today many more women are being identified and treated and are finding this wonderful resource. When this site started and we would go on the internet to gather information I remember the odds for me as a stage 3C her2+ breast cancer patient were around 10% that I would live 5 years. This site offered us information, hope and the awareness that these numbers were no longer correct. So many wonderful, intelligent, resourceful and brave women have and continue to support and educate those of us lucky enough to find this site. We truly are blessed that Christine and Joe recognized the need and had the drive to provide us all with this site. As the story of cancer has evolved and new treatments are discovered this site is also expanding and continues on as a legacy to Christine, Joe and their family.

Thank you

Cathy

03-19-2018, 12:23 PM	#7
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: The beginnings of HER2Support I would like to reiterate what Sarah said. Just recently an oncologist was shocked to find out that I had herceptin in 2005. It was just brought into Canada that year and I remember women driving to the US and paying $50,000 a year to get treatments. I had asked to be tested as it wasn't a standard test at that time. Today many more women are being identified and treated and are finding this wonderful resource. When this site started and we would go on the internet to gather information I remember the odds for me as a stage 3C her2+ breast cancer patient were around 10% that I would live 5 years. This site offered us information, hope and the awareness that these numbers were no longer correct. So many wonderful, intelligent, resourceful and brave women have and continue to support and educate those of us lucky enough to find this site. We truly are blessed that Christine and Joe recognized the need and had the drive to provide us all with this site. As the story of cancer has evolved and new treatments are discovered this site is also expanding and continues on as a legacy to Christine, Joe and their family. Thank you Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18 Last edited by Cathya; 04-26-2018 at 09:03 AM..