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Re: ER/PR negative survivors
Im also hormone negative and her2 positive. Stage IV a month after diagnosis..mets to liver and brain, currently no evidence of disease at 2 years out from diagnosis. I just keep putting one foot in front of the other, trying to live in the moment and not worry about anything that has not happened yet. I started Herceptin right after my surgery and have been on it ever since, and I am also on Tykerb at the moment hoping to keep any potential brain recurrences at bay.
Im certainly happy to meet you, but sorry we have to meet under these kind of circumstances. I will certainly keep you in my prayers...
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Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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