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Dear Sherry,
Although I don't know you well, yet I read many of your writings and have always felt that I know you. Your last message cried out for replies from your fellow BC sufferers. It was a message, so real and so frustrating. It is a difficult task to write a compassionate message, knowing the deteriorating conditions you are experiencing everyday.
The important point here is the quality of life. I would think that you would rather be free of the burdensome injections and tubes. Everyday we should all count as blessings to have your loved ones around you. Enjoy to see them as often as you can. Ask Him to be your guide. Peace and tranquility.
My sincere best wishes.
Ann
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