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Old 12-06-2012, 03:22 PM   #6
jacqueline1102
Senior Member
 
Join Date: Apr 2012
Posts: 183
Re: What do we do now?

When I was diagnosed I felt incredible guilt and shame. I was used to being the "go to" person and being in the "sick" role was difficult and still is. I had only been married 3 months when I was diagnosed with Stage IV Inflammatory breast cancer. Our lives are not the same and never will be. It is what it is. My husband and I talk about it even if it makes him sad and uncomfortable. The trauma of the disease and the losses that you have had are indeed difficult for you and him. If he will not accompany you to counseling, you could read some books together if he would be open to it. Oftentimes, the person diagnosed with the disease barrels through the treatment, whereas the family members are still left reeling. If your husband is still in the thought process of losing you, connecting intimately physically or emotionally will be challenging for him. There is a ton of material on the subject of cancer and marriage. The trauma of losing your child is yet another trauma. In the field of mental health there is such a term as complicated grief. This may be coming up now that you are both in place of physical strength which can allow the difficult but necessary work of emotionally healing.

Take care,

Jackie
__________________
10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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