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Old 05-25-2011, 06:22 PM   #13
CoolBreeze
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Join Date: Dec 2009
Posts: 562
Re: Possible Liver Mets?

Thank you for all your support, ladies.

It does, indeed, appear to be liver mets. There are two of them, one 2.4 cm and one 2.0 cm. They are rushing a biopsy through, and once that confirms cancer, he's doing a PET. He won't define it as cancer for sure until those cells are on a slide, but he said he has to assume that it is cancer. Five months ago, there was nothing there.

Thank goodness somebody else had left-side pain with this! Maybe that's all it is and not cancer anywhere else too. One of the lesions is in the left hepatic lobe, and one is in the right. The pain is constant, even oxy doesn't cut it.

My doctor says I'm "salvagable" if that's all there is.

I would love to hear about your experience with liver mets if you would like to share. We all imagine that this disease will come back to get us, but I always figured bones, not liver, which is kind of weird of me. I have no idea what liver mets is like or even the prognosis (and I don't want to look right now).

Does the biopsy hurt, will I have to do chemo forever, will I be bald for the rest of my life? Can I work? (I love my job.)
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08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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