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dearjilly · 04-01-2013, 06:44 PM

Joan,
Thanks so much for your message. I really do find comfort when reading it all. They told me this afternoon that they'd like to get a biopsy. It's risky though, so I'm scared. I see the neurosurgeon on Friday. Also, what's the difference between a brain MRI and a brain PET?
I will make sure that I ask all of the questions I need to before I make a decision. It's all very overwhelming right now and I must remember to think, it could be nothing. Just like you said.

Thanks Joan. Like I said, you have helped me SO much through this. I really do appreciate you, and my sweet her2 friends who seems to take care of each other really well.
Love you all! Jill

04-01-2013, 06:44 PM	#15
dearjilly Senior Member Join Date: Feb 2012 Location: Ontario, Canada Posts: 115	Re: Progression or Necrosis in the brain? Joan, Thanks so much for your message. I really do find comfort when reading it all. They told me this afternoon that they'd like to get a biopsy. It's risky though, so I'm scared. I see the neurosurgeon on Friday. Also, what's the difference between a brain MRI and a brain PET? I will make sure that I ask all of the questions I need to before I make a decision. It's all very overwhelming right now and I must remember to think, it could be nothing. Just like you said. Thanks Joan. Like I said, you have helped me SO much through this. I really do appreciate you, and my sweet her2 friends who seems to take care of each other really well. Love you all! Jill __________________ [ Feb 2013 - NED Mar 2013 - thought I had progression, watching brain. April 2013 - GOT MARRIED!!!! May 2013 - looks like no progression, but necrosis and bigger. Oct-Dec 2013 - Avastin tx Nov 2013 - MRI shows necrosis shrinkage!!!! Jan 2014 - Lepto Mening. disease found Feb 2014 - WBR March - BLAHHHH April 2014 - Liver mets found April 2014 to present - Chemo again, whooohoo. Fun! July 2014, scans look good. Stay on Perjetand hercertin. Nov. 2014 more lepto-mening disease more WBR. Feb 2015 more lepto-mening disease in spine and neck. More radiation. Start on TDM1 no more Perjeta stay on herceptin March 2015 more radiation in my thoracic area, more lepto-meningial disease April 2015 trying to walk again. [/SIZE][/FONT]