Thread: doctor update
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Old 07-29-2011, 12:17 PM   #6
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
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Re: doctor update

Dear Pam -
As always you have my best wishes, prayers and positive vibes going out for a better result.
I had high hopes for the Halaven having better control of your cancer.

I am thinking that exercise on floor mat or bed would be good type for you. If floor is too difficult in getting up and down, then your bed should be a good safe place. Thinking that you need to avoid a fall so prone position is appropriate.

There are "core exercises" that are good either on your front or back. You can do the bicycle in the air type on your back. This is good for circulation as well.

Do you have some 2 or 3 pound weights for your arms and upper body. The excercises with these can be done seated.

Also, don't forget the Sit and Be Fit lady on TV. That is better than nothing. My mom likes that show and easy workout.

Can't imagine your PT would not be thinking along the above lines.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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