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Old 09-13-2009, 12:55 PM   #6
sassy
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Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
Re: Chemotherapy Permanent Hair Loss

I have had a similar situation with curls and straight hair. My hair had been more frizzy than curly all my life, but easy to tame and wear curly. After chemo it came back darker (almost black instead of dark brown) with really nice soft curls----loved it. It has lightened some now, more my original color, but in the last six months has gone completely straight, thinner, and has the weird cowlicks. I've been off Herceptin since Jan of 07, but I'm still on Lupron and Arimidex. Hoping to stop Lupron soon and interested to see what happens with the hair (and my weight!)

Hope this didn't hijack your thread, Nancy, but it may all tie in somehow.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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