HER2 Support Group Forums - View Single Post - important-- turning her2+ Stage IV into chronic treatable disease

Juls · 10-27-2015, 07:50 AM

I read this post months ago and reread today. I'm with forher. Not to take away from the rest of the article but the "in most cases resistance to the treatment develops within a year" really bothers me.
If true why are some of us on this for years. I have been on H for 2 1/2 years, another lady at my clinic has been on it for 8-9 years & many others just as long. I do realise that Doctors are unsure about when to stop treatment in case it comes back.
In another recent post Dr Slamon suggests if no progression at 3 years , consider stopping herceptin. So who or what do we trust or do?

Nora - In UK at the moment many drugs cancelled here due to cost. TDM-1 is another one at risk. There is a petition here aiming to get 50,000 signatures to send to Roche to bring cost down. Its just under the 50k at the moment. (change.org) The problem is it seems quite low key!

10-27-2015, 07:50 AM	#12
Juls Senior Member Join Date: Mar 2014 Location: UK Posts: 563	Re: important-- turning her2+ Stage IV into chronic treatable disease I read this post months ago and reread today. I'm with forher. Not to take away from the rest of the article but the "in most cases resistance to the treatment develops within a year" really bothers me. If true why are some of us on this for years. I have been on H for 2 1/2 years, another lady at my clinic has been on it for 8-9 years & many others just as long. I do realise that Doctors are unsure about when to stop treatment in case it comes back. In another recent post Dr Slamon suggests if no progression at 3 years , consider stopping herceptin. So who or what do we trust or do? Nora - In UK at the moment many drugs cancelled here due to cost. TDM-1 is another one at risk. There is a petition here aiming to get 50,000 signatures to send to Roche to bring cost down. Its just under the 50k at the moment. (change.org) The problem is it seems quite low key!