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Old 02-01-2016, 10:50 PM   #342
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: Calling all stage iv sisters

Well, guess it's time to update the list? Or should we just continue the conversation among ourselves?

Yip, you heard/read it right. I just used the word 'ourselves'.

Have experienced changes in my bowel movement the last couple of years. Requested an early Colonoscopy which came back benign (diverticulosis). Always thought I'd get another Lynch Syndrome cancer as my late Mother, who passed away at 91 years of age two years ago, had been treated successfully for Non-Hodgkin's Lymphoma when she was 75. And 2nd Brother, who's 10 years my senior, is a 7 year colon cancer survivor.

Well, guess what? I finally hit the JackPot!

1. Dilated appendix with thick wall and central hypodensity, without significant surrounding inflammatory changes or fluid collection. These findings may
represent early appendicitis or mucinous neoplasm. Mild right lower quadrant lymphadenopathy is also present.
2. Interval development of multiple hypodense lesions in the right hepatic lobe. This finding is concerning for metastatic disease. Given the appendiceal findings, hepatic metastases is a consideration. However, the patient also has a history of breast cancer, with metastatic recurrence an additional consideration.
3. Stable benign hepatic hemangiomas.

Will see the oncologist Wednesday to discuss the result. No, he did not order the scans. The nurse practitioner at the clinic near FIL's house (We've been staying in the country to help take care of the soon-to-be 93-year-old 'DeDaddy') had ordered it after I had complained about the discomfort in the lower right quadrant and pressure on the right side of the bladder. I've been having frequent UTIs since the total hysterectomy five years ago. She ordered an ultrasound at the main hospital in our town and right after the procedure I was told to have
a CT done the same day. She called me after hour (6:20 pm) and wanted to see me Monday to discuss the result.

I was told to make an appointment with my oncologist. I did, and the earliest appointment is March 4th. But a few hours later, I received a call from the hospital/clinic and was told to see my oncologist this Wednesday.

Guess they had figured out it's a serious situation ...

Felt very blessed as I'd known so many successful stories and wonderful fighters through this thread. The nurse practitioner probably had never expected my calm reaction ... Yip, two brain tumor (Central Neurocytomas - unrelated to BC, though could be due to the same gene defect I'd inherited) surgeries, two breast cancer surgeries, a total hysterectomy, and now possible liver mets treatment...

We'll get it taken care of, just like all the other challenges we had faced before.
Thanks for everyone's encouraging story. "You lift me up ...".
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-24-2016 at 05:10 PM..
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