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Sheila · 05-28-2011, 06:02 AM

Just wondering what any of you did for bone pain (if you had it) while on these drugs...I am on both to maintain my white counts for the Halaven.....which by the way, my last CEA was down from 16.4 to 2.1 (below normal ) which is a YEAHHHHHHHHHHHHHHHHHHHH
On the down side, this drug has trashed my white cells like no other...I have been on Neupogen for 2 months and added Neulasta to the mix over a month ago....truly, my hipbones are so sore I feel like I have no padding....I have dropped some wait, but from a side view, I still have plenty of junk in my trunk.
I have tried Extra strength Tylenol...no help, and Ibuprophen...some help....just wondering if there is something else I havent thought of...it truly is a pain in the a**....and the femur, and the arms!
Feeling stronger every day since my episode last month...thinking about shopping, which is something I haven't wanted to do in a while, thats always a good marker for me!

05-28-2011, 06:02 AM	#1
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Neupogen & Neulasta Bone Pain YIKES!!!!! Just wondering what any of you did for bone pain (if you had it) while on these drugs...I am on both to maintain my white counts for the Halaven.....which by the way, my last CEA was down from 16.4 to 2.1 (below normal ) which is a YEAHHHHHHHHHHHHHHHHHHHH On the down side, this drug has trashed my white cells like no other...I have been on Neupogen for 2 months and added Neulasta to the mix over a month ago....truly, my hipbones are so sore I feel like I have no padding....I have dropped some wait, but from a side view, I still have plenty of junk in my trunk. I have tried Extra strength Tylenol...no help, and Ibuprophen...some help....just wondering if there is something else I havent thought of...it truly is a pain in the a*....and the femur, and the arms! Feeling stronger every day since my episode last month...thinking about shopping, which is something I haven't wanted to do in a while, thats always a good marker for me! __________________ "Be kinder than necessary, for everyone you meet* is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin