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StephN · 02-24-2012, 04:51 PM

Dear Michka -
We are not happy to hear that you have those new issues to deal with. But I do like the fact that your onc wants another scan (what kind?) next week to coroborate this last one that is throwing you for a loop.

Was also thinking about a biopsy since you may have some tissue that can be gotten at for analysis. I imagine he would want the slide from your liver to compare with a new tumor biology.

There are many ways to go at these tumors, just as soon as your doctor is sure about what the scans say.

If you try for T-DM1 before you have had some other drugs, it may disqualify you from their use in future. Try to check the drug ladder for the new drugs and trials.

Certainly you feel bad for causing pain to those closest to you, but they are there for you and know that you have been fighting the NERDy cancer with all you have.

Hugs and bises.

02-24-2012, 04:51 PM	#24
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: Bad Pet. I need you. Dear Michka - We are not happy to hear that you have those new issues to deal with. But I do like the fact that your onc wants another scan (what kind?) next week to coroborate this last one that is throwing you for a loop. Was also thinking about a biopsy since you may have some tissue that can be gotten at for analysis. I imagine he would want the slide from your liver to compare with a new tumor biology. There are many ways to go at these tumors, just as soon as your doctor is sure about what the scans say. If you try for T-DM1 before you have had some other drugs, it may disqualify you from their use in future. Try to check the drug ladder for the new drugs and trials. Certainly you feel bad for causing pain to those closest to you, but they are there for you and know that you have been fighting the NERDy cancer with all you have. Hugs and bises. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018. Last edited by StephN; 02-24-2012 at 07:54 PM..