HER2 Support Group Forums - View Single Post - A/C was easier than Taxol / Herceptin / Perjeta - :-(

europa · 09-18-2014, 03:59 PM

Hey there,
Sorry it's so horrible. I experienced the same thing. AC was easier than Taxol was. I had all of your side effects except neuropathy and diarrhea. I found that coconut oil was amazing for my facial rash and I too had a raw nose that the oil helped. I also noticed that when I got to the 8th dose the side effects stopped being so bad. The only thing that lingered was a horrible horrible bloody nose. My sinuses took a beating during taxol and I'm still dealing with issues whenever allergy season starts or I get a cold.
I also noticed that my finger nail beds were a little numb, maybe a tiny bit of neuropathy and I would massage my fingers every night and every morning with a very heave hand cream...it seemed to work. I don't know if you get body aches. I did and a hot shower would do the trick. I sometimes would take up to 4 showers a day to ease the aches.
Once taxol is over you are going to feel soooooo much better. Promise

09-18-2014, 03:59 PM	#3
europa Senior Member Join Date: Jan 2012 Posts: 362	Re: A/C was easier than Taxol / Herceptin / Perjeta - :-( Hey there, Sorry it's so horrible. I experienced the same thing. AC was easier than Taxol was. I had all of your side effects except neuropathy and diarrhea. I found that coconut oil was amazing for my facial rash and I too had a raw nose that the oil helped. I also noticed that when I got to the 8th dose the side effects stopped being so bad. The only thing that lingered was a horrible horrible bloody nose. My sinuses took a beating during taxol and I'm still dealing with issues whenever allergy season starts or I get a cold. I also noticed that my finger nail beds were a little numb, maybe a tiny bit of neuropathy and I would massage my fingers every night and every morning with a very heave hand cream...it seemed to work. I don't know if you get body aches. I did and a hot shower would do the trick. I sometimes would take up to 4 showers a day to ease the aches. Once taxol is over you are going to feel soooooo much better. Promise __________________ DX 10/2011 PET Scan + MRI 10/2011 Lumpectomy 11/11/11 Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node) AC started 12/2011 ended 1/2012 Taxol + Herceptin weekly for 12 weeks ended 4/2012 30 zaps of radiation done 6/2012 Tamoxifen 6/2012 every 3 weeks of Herceptin for another year. Metformin Trial 8/12 10/12 MRI- CLEAR 01/13 BRAIN MRI- CLEAR! 01/13 Neck MRI- CLEAR! FINISHED HERCEPTIN 1/9/2013...Woot Woot Starting Walter Reed Vaccine Trial 2/13 CT Scans + ultrasound of abdomen CLEAR-5/13 02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging 12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner 12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system 1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy. 4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life. 7/27/2018 hysterectomy and oopherectomy 01/07/2019 Mastectomy and expanders put in 3/22/2019 Vtach, almost died. Cause unknown. 7/22/2019 New perky boobs put in 7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018. www.mychemobag.org www.facebook.com/mychemobag 8 YEARS NED