HER2 Support Group Forums - View Single Post - Important re Tykerb alone in Adjuvant setting

cecw · 10-02-2011, 11:22 AM

Sandra,
thank you for your concern. I am being seen by the doc who enrolled me in the Allto trail and by specialist from IU med center.All I keep getting are mugas and some blood draws because they are part of the trail.I have been very uncomfortable with no scans but they both tell me they are not needed and would be just more stress. Now I feel like I don't know who to turn to or what to do. I guess I'll call both of them tomorrow and be a lot more demanding. I don't understand why I haven't been notified about the trial concerns. I've done all follow ups my last one was May next one is scheduled for Dec

10-02-2011, 11:22 AM	#11
cecw Member Join Date: Jan 2010 Posts: 8	Re: Important re Tykerb alone in Adjuvant setting Sandra, thank you for your concern. I am being seen by the doc who enrolled me in the Allto trail and by specialist from IU med center.All I keep getting are mugas and some blood draws because they are part of the trail.I have been very uncomfortable with no scans but they both tell me they are not needed and would be just more stress. Now I feel like I don't know who to turn to or what to do. I guess I'll call both of them tomorrow and be a lot more demanding. I don't understand why I haven't been notified about the trial concerns. I've done all follow ups my last one was May next one is scheduled for Dec