HER2 Support Group Forums - View Single Post

Believe51 · 09-18-2007, 10:02 AM

We too had the best of coverage when my husband was working. After he was deemed disabled we did loose it and were left to depend on the state. Imagine that, 15 years of paying for insurance 'he' never used because he was the poster man for health and he is left there in the cold with a disease that is even colder. This is not to whine for it is my life, just amazing the turns life can make in a matter of moments.

Since he provided the household with medical and he turned into the patient, we are out to fend for ourselves. Again not complaining. Guess it is my way of yelling out loud. All I want is for him to get what he needs to have the fairest shot possible to beat this monster!!

Right now we are recieving what we need, not with ease but we are able to get billed for services. When we reach our quota he will have state insurance again, I will be without insurance until the next open enrollment at work. It sucks that last year we were driving a Cadillac El Dorado and today I cannot even pick up a prescription. (not a materialistic comment at all!!)

All in all I am just happy to have him here and the rest will work itself out. We are totally happy with the medical team helping us to get a grip on this journey and all of the different resources that have pulled together to help!!

Brenda, "Commitment To Access" is a wonderful program and we are truely blessed to have it here for us!! Thanks Love, your post got me on the phone and he will have his Tykerb tomorrow!!

Big hugs & prayers>>Believe51

09-18-2007, 10:02 AM	#32
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Interesting post We too had the best of coverage when my husband was working. After he was deemed disabled we did loose it and were left to depend on the state. Imagine that, 15 years of paying for insurance 'he' never used because he was the poster man for health and he is left there in the cold with a disease that is even colder. This is not to whine for it is my life, just amazing the turns life can make in a matter of moments. Since he provided the household with medical and he turned into the patient, we are out to fend for ourselves. Again not complaining. Guess it is my way of yelling out loud. All I want is for him to get what he needs to have the fairest shot possible to beat this monster!! Right now we are recieving what we need, not with ease but we are able to get billed for services. When we reach our quota he will have state insurance again, I will be without insurance until the next open enrollment at work. It sucks that last year we were driving a Cadillac El Dorado and today I cannot even pick up a prescription. (not a materialistic comment at all!!) All in all I am just happy to have him here and the rest will work itself out. We are totally happy with the medical team helping us to get a grip on this journey and all of the different resources that have pulled together to help!! Brenda, "Commitment To Access" is a wonderful program and we are truely blessed to have it here for us!! Thanks Love, your post got me on the phone and he will have his Tykerb tomorrow!! Big hugs & prayers>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!